5 pounds 7 ounces
Mr. Calen what are we going to do with you. Still living the high life here at the valley. Calen is still not really progressing on the bottle very much, he is taking two full bottles a day at a max which would be 1 during the daytime and 1 during the night time. That means he still needs to drink at least 6 more full bottles a day without needing someone to pipe it down his belly for him. Seems like a lot of work for such a tiny baby but that is the make it break it deal to get him out of here. His oxygen needs are still present, the concentration is not changing when it actually comes to the amount of supplemental oxygen he is receiving which is 30%, 9% more than normal air around us, but they are making decreases on his liter flow, taking away that constant positive flow and making him work that much more to expand those lungs. He is down to 1/2 a liter flow so this is fantastic. Since we are working into the extended care package here at the hospital we might get to see him off oxygen before leaving, we shall see.
There was a little rumor that we heard about yesterday and that was if he was to get to 43 to 45 weeks and was still needing to be in the hospital then they would have to transfer him to Children's. Really not super exciting news, I really think a change of venue would be super stressful on us, but there is a lot of optimism that we should not end up in that position.
We now have some mature eyes. The last eye doctor visit showed that they were fully grown and good to go so now he doesn't have to have his eye's checked out again for another year. WooHoo, thats another landmark down. His hearing, I am not sure if I have talked about this before, but he was failing his hearing test in his left ear and passing in his right, they said they feel it was due to him crying and being very upset, but we have to followup outpatient with an audiologist to have that checked out once he leaves the hospital.
I was working on burping him, if I hold him like that though he tends to fall asleep.
Well then a lot of times if I am in that chair I fall asleep too!
We learned today that there is possibly an inguinal hernia that has developed on Calen's left side. It was not noticeable or palpable today but there was just a note that someone had felt there was a possibility of one. It could have just been a pocket of fluid or something but we really don't know. That will just have to be simply monitored and if he really did have one it would have to be surgically repaired so lets hope for no hernia. He is still on lasix everyday with no potassium replacement and vitamins and I think those are the only medicines.
Mom and Calen sharing some smiles.
Today is bath day, we love bath days, get to unhook all his gizmos and he smells so good afterward. Today he was extremely flatulent and had several bowel movements, one of which was on his bath blanket, luckily it wasn't projectile or momma would have needed a new shirt. Maybe if he clears out his bowels he will start eating a lot more.
Calen stopping to pose during his swaddle bath.
Mom, daytime primary nurse Stephanie, and Occupational Therapist Marie. Marie came in to follow up on his neck to make sure he is looking both directions which he is so it was a quick and simple visit.
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